By Vince LaMarca, M.A., BCBA, Editor
Lovaas Institute - Indianapolis
I read with interest the article from the Associated Press concerning autism and insurance laws http://ap.google.com/article/ALeqM5iT3S7GDQdN8H8DfSkpTf58lqVCKAD93U0F7O0
As a behavior analyst for the Lovaas Institute in Indianapolis for the past 9 years, I have seen behavior therapy move from a treatment (prior to the insurance mandate of 2001) that I typically provided to families of doctors, lawyers, and businessmen, to a treatment that I now provide to a variety of families including teachers, retail store employees, and police officers.
Let’s be clear. The autism mandate has allowed the most effective treatment for children with autism to become accessible to families at all income levels.
I would make three clarifications to the Associated Press article, though. I understand that reporters, in an attempt to remain unbiased, try to present both sides of an argument. However, it is unfortunate when one side of the argument contains misleading information.
First, Tristam Smith has already submitted a correction to the comment that evidence for behavior therapy with older children is “sparse” when in fact it is readily available (http://www.lovaas.com/blog/).
Second, the article states that “The most rigorous studies [of behavior therapy] show mixed results.” However, the article mentions ONE rigorous study that shows mixed results (e.g., Smith, 2000) while failing to mention the MANY OTHER rigorous studies that show clear evidence that behavior therapy is profoundly effective (e.g., Lovaas, 1987, Sallows, 2005, Howard, 2006). http://www.lovaas.com/research.php. In 2001, National Research Council’s Educating Children with Autism noted that behavior therapy, in particular the UCLA Young Autism Project, had “the most rigorously controlled early intervention research published to date (Lovaas, 1987). http://www.nap.edu/openbook.php?record_id=10017&page=170. While the report went on to note some of the limitations of the research, many of those limitations have been overcome with new research that has been published since 2001. (Another relevant point of interest concerning the research council’s report appears in the section on adaptive behavior. It reads, “There is substantial data, particularly with older children and adolescents, that behavioral interventions, particularly those with attention to generalization, can result in improved adaptive behavior in children with autism..” http://www.nap.edu/openbook.php?isbn=0309072697&page=114
Finally, the Associated Press article states that “Another study in preschoolers, published in 2005, showed little difference between an intensive ABA-based program run by therapists and less-intensive therapy from parents.” What the article fails to mention is that the “less intensive” therapy in this article (Sallows, 2005) http://www.lovaas.com/research.php was still behavior therapy, still included frequent and ongoing oversight from qualified behavior analysts, still included therapists who passed rigorous quality control measures, and still included 35-40 hours of weekly therapy.
I urge all families of children with autism in every state to do what we have done here in Indiana – make the services proven effective for individuals with autism affordable for everyone through insurance funding. The financial impact to the system is minimal (less than 1% of the cost of insurance, according to the article) while the benefit to many children with autism is immeasurable. Ask any of the families for whom I have worked.
Comments
The mandate has had life changing benefits for our family. I live in Indianapolis and my son received ABA therapy from Vincent Larmarca for approximately 20 months. As a family with one income, insurance coverage was a must and made the whole program accesible to us. The good news is we caught it early and got a diagnosis at 24 months. After a year and a half of intense therapy my son finished the program and is now a completely normal 6 year old boy with many friends and at the top of his class! no symptoms at all! totally impossible without the mandate.
I recently came across your blog and have been reading along. I thought I would leave my first comment. I don't know what to say except that I have enjoyed reading. Nice blog. I will keep visiting.
Ruth
Vince, I'm kind of late to this discussion, but I wanted to say, nice post and discussion of how implementation of the autism mandate in Indiana is working. Thanks for the correction on the errors in the AP article.
There are fiscal analyses of potential implementation of mandates at autismvotes.org, and below is a recent (Feb. 2009) published article that might be of interest and use to those who are advocating for insurance mandates and coverage of behavioral services via health insurance. I'm including the abstract, but the full article requires a subscription or pay-for-article.
Bouder, J. N., Spielman, S., & Mandell, D. S. (2009). Brief report: Quantifying the impact of autism coverage on insurance premiums. Journal of Autism and Developmental Disorders.
DOI: 10.1007/s10803-009-0701-z
Abstract Many states are considering legislation requiring private insurance companies to pay for autism-related services. Arguments against mandates include that they will result in higher premiums. Using Pennsylvania legislation as an example, which proposed covering services up to $36,000 per year for individuals less than 21 years of age, this paper estimates potential premium increases. The estimate relies on autism treated prevalence, the number of individuals insured by affected plans, mean annual autism expenditures, administrative costs, medical loss ratio, and total insurer revenue. Current treated prevalence and expenditures suggests that premium increases would approximate 1%, with a lower bound of 0.19% and an upper bound of 2.31%. Policy makers can use these results to assess the cost-effectiveness of similar legislation.





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